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Retinitis Pigmentosa

Retinitis pigmentosa (RP) is an eye disease that is inherited, and very rare. About one in four thousand Americans are affected by this disease. The retina, which is the light-sensitive portion of the eye, degenerates progressively over time. The result of this degeneration is the loss of peripheral vision, loss of central vision, night blindness, and sometimes blindness.

Retinitis Pigmentosa Symptoms

Childhood is when the first symptoms of retinitis pigmentosa generally appear. Usually both eyes are implicated in the disease. Sometimes RP doesn’t appear until older age, at age 30 or even older.

The main symptom of RP in the beginning stages is night blindness. Tunnel vision may develop in the later stages of the disease, where central vision is affected, and only a small portion of sight is available.

One study of patients suffering from RP revealed that, in patients 45 years and older, 52% had at least 20/40 central vision in one eye, 25% had 20/200 vision or below, and 0.5% were completely blind.

Causes of Retinitis Pigmentosa

Very little is known about the causes behind RP, beyond that it is an inherited disease. Scientists believe that defective molecules in our genes cause RP. This explains why the disease affects patients so differently.

If one parent carries the defective gene, it’s possible to get RP, even if your parents do not have the disease. Approximately one percent of the population are carriers of the RP recessive gene. Sometimes this recessive gene is passed on to the child, who will then develop retinitis pigmentosa.

RP affects the retina in the eye. The disease causes the light-sensitive cells that are located in the retina to die gradually. Most often, the cells that are used for night and peripheral vision, called rod cells, are affected. Sometimes the cells that are used to see color and for central vision, called cones, are also affected.

Diagnosis and Treatment

The main diagnostic tool employed is visual field testing. This test determines how much peripheral vision loss has occurred. Other diagnostic tools may be used to test night vision and color vision.

Few treatments exist for RP. What is available helps conditions associated with RP, not the disease itself. For patients older than 25, there is a prosthesis system that was recently approved. This system captures images via glasses, and transmits the signal captures to an implanted device located on the retina.

Most treatments center around helping the patient learn to deal with their vision loss. Psychological counseling, and occupational therapy, may be recommended. Technological instruments that help with low vision, such as illuminated magnifiers, can help patients with RP see as well as possible with their limited vision. Some doctors recommend vitamin A supplements as there is some evidence that vitamin A might help delay the progression of the disease.

For the future, scientists are hopeful that there will be additional treatments for RP, including new drug treatments and retinal implants.

Dear valued patient,

We take our commitment to keeping our patients and team safe and healthy inthe midst of this COVID-19 pandemic very seriously. We want to share our plan to comply with social distancing guidelines for your upcoming appointment. Please carefully read the steps below and follow our direction when you arrive. Our team will all be wearing masks and we ask that you bring one with you to wear during your visit (for everyone’s safety, we are requiring staff and patients to wear masks).

We ask patients to complete necessary paperwork online if possible. Click here to access the forms. You may also choose to text a photo of your insurance card and photo ID to the clinic at 763-537-3213.

When you arrive for your appointment, enter the main doors and wait in the front alcove until a staff member greets you. Our front desk team will ask you general health questions to rule out the presence of COVID-19 symptoms.

We are asking that only the patient enter the building for the exam. (Exceptions: Children under 18 may be accompanied by one guardian, and adults with special needs may be accompanied by one caretaker.)

When you enter the building:

Staff will ask you to use hand sanitizer and then you will complete any necessary paperwork that you were not able to complete online, and we will make copies of your insurance card and photo ID if you did not text a picture of them to us.

Prior to seeing your doctor, a technician will escort you to a pre-testing room where you will be asked to wash your hands. We ask that you follow the CDC’s recommendation of washing your hands thoroughly, for a full 20seconds, with soap and water.

Rest assured that every surface and every piece of equipment you come into contact with has been sanitized prior to the arrival of each and every patient entering our practice, and it will be cleaned again as you exit each area.

The team will be frequently washing their hands between interactions as per our usual protocol, and you’ll also see hand sanitizer throughout the practice for your use, as well.

Optical – Shopping for Glasses, Adjustments and Repairs, and Glasses Pick-up

We are scheduling appointments for all optical needs. Please call the clinic at 763-537-3213 to schedule your appointment.

When you are shopping for glasses, one of our ABO certified opticians will ask you to be seated at a station where you will discuss your needs, likes and dislikes. To ensure social distancing, the optician will bring frames to you so you can try them on at the station. The optician will continue to bring frames to you until you find the perfect pair!

We sterilize every frame a patient touches in a UV Cleaning Unit after a shopping appointment so you can be assured any frame you try on has been sanitized prior to your visit.

If you have any questions or concerns, please don’t hesitate to call us. We look forward to seeing you!

Thank you for your patience and cooperation,

Your Crystal Vision Clinic Eye Care Team

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We sterilize every frame a patient touches in a UV Cleaning Unit after each shopping appointment so you can be assured any frame you try on has been sanitized prior to your visit.